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Memory Disease Caregiver Support Booklets and Christian Fiction
Moments of Peace and Quiet
October 20,2024
Your loved one with dementia has been bathed, fed, and is up for the day. You have a walk, lunch with some of their old friends, and music time at the senior center planned. It is going to be a full day, but there are a myriad of texts and emails concerning your loved one’s care to answer. You need a few moments of peace and quiet. However, you know from experience, your loved one will not just sit there with nothing to do.
This is where Amazon comes to the rescue. Yes, there are a lot of “fidget activities” on-line you can purchase from Etsy and other websites, too. Google “fidget activities for Alzheimer’s patients” and you will find plenty of choices. Such as:
1) Fidget busy boards, cubes, boxes, blankets, cushions, quilts, and even aprons
2) Magic paint books – pictures appear when water or a gel marker is applied
3) Tinkerer’s Wooden Lock Box caught my eye for the men – lots of locks to play with
4) Activity ball box with different size and textured balls
5) Activity conversations cards, this might require two people, or entertain them for awhile
These are just a few ideas that can not only keep them busy but are tactile experiences known to decrease agitation and wandering. Select one or two fidget activities at first, keeping in mind your loved one’s skill level and life interests. Perhaps someone who loved to paint will enjoy the painting or it could agitate them as it is not their original creation. Also don’t forget to check reviews and the company’s return policy.
Play some quiet music while they are engrossed with their activity and enjoy your much needed peace and quiet.
Finding Good Memory Care
August 1, 2024
In a recent conversation with a friend, the subject came up of finding memory care for her father. She and her mother were doing all the right things. Visiting a number of communities, finding out the resident/caregiver ratio, and the skill level of the staff besides obtaining quotes on the cost of care.
It is difficult to face, placing your loved one in a Memory Care community or in an Adult Care Home (Board and Care). But once that decision has been made how do you proceed? Where do you turn? How can you find the best care for your budget? There is good advice on line, here are a few resources:
1) The Alzheimer’s Association has help planning and how to proceed. Go to: alz.org/help&support/careoptions
There you can choose between long-term care or other relevant topics.
2) A Place for Mom has a list of questions to ask https://www.aplaceformom.com/caregiver-resources/articles/memory-care-checklist
3) Bonaventure Senior Living has a Step-by-Step Guide https://bonaventuresenior.com/choosing-the-right-memory-care-service-a-step-by-step-guide/
4) The National Institute of Aging provides a list and links to other government agencies.
Often you can get a sense of a place the minute you walk in the door. How you are greeted, the cleanliness, and even the smell or lack of it tells you a lot. After you are past the reception desk, do the caregivers and other staff members greet you with a smile? Do they look happy about working there? How are the caregivers interacting with the residents? Visit at different times of the day to see what is really going on. What is the basic mood of the place? Does it feel safe? Do they have some sense of security, i.e. sign-in, or concern for who is visiting? Is the location close enough for you to visit on a regular basis? You need to drop in unannounced so that you are a good advocate for your loved one. Staff often changes at memory care communities, due to the nature of the job there is a high rate of burn-out. However, if the community has a low turnover rate that is another sign they are doing something right.
Another valuable resource is your local ombudsman. Once you narrow your selection down to three places give their office call. You can glean valuable information, such as their opinion of the communities. And how many reports on abuse or neglect have been filed against the communities you are considering. You can find them at the National Long-Term Care Ombudsman Resource Center. Click here to find out more about the role of the ombudsman.
Itcombudsman.org
Ask to have lunch with your loved one at your final community selections before you make a decision. Talk to other family members who are visiting their loved ones. Ask about the consistency of the food quality, the care, etc. Also ask your final selection to allow your loved on to participate in some of the activities for a day. If it is not a good fit, do the same at your second and third choices. However, subjecting your loved one to multiple places might be confusing to them so start with the one you believe is right for them.
Avoiding Caregiver Resentment
May 2nd, 2024
Becoming a dementia family caregiver happens unexpectedly. There is no big preparation time – it just happens. Sometimes gradually, others times almost overnight. For a spouse, it can mean giving up retirement travel plans, a new venture, or time with the grandkids. As a result of this role change, the caregiver can struggle with resentment. There are different emotions at play, perhaps grief over a dream fading away or their relationship changing.
Caring Bridge has a great article this month on their website, Caregiving Advice page, called Managing Resentment: Challenges of Spousal Caregiving. As the writers explain:
“As a family caregiver, you wear many hats – from nurse and companion to advocate and housekeeper – all while juggling your own emotional needs. So, it’s understandable that many caregivers report feeling overwhelmed and resentful of their situation and, sometimes, the partner for they care. If you feel this way, you’re not alone.”
In the article you will find tips on how to navigate the emotional side of being a caregiver. This article is an important resource for all caregivers. As a daughter or son caregiver we often give up job opportunities or even our job, or put lifelong dreams on indefinite hold. When we do make major sacrifices, there are unexpected emotions involved.
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Most photos are taken by Stanley J Lonseth, capistranobeachphotography.com